Protocol for a qualitative study exploring the lived experience of hearing loss and patient reported experience in the UK:the HeLP study


INTRODUCTION: Worldwide, hearing loss is a significant public health issue and one of the most common chronic health conditions experienced by older adults. Hearing loss is associated with communication difficulties, social withdrawal, isolation and lower quality of life. Although hearing aid technology has improved significantly, the workload of managing hearing aids has increased. The aim of this qualitative study is to develop a novel theory of people's lived experience of hearing loss across the lifespan. METHODS: Eligible participants will be young people and adults aged 16 years and above who have a hearing loss and carers/family members of people with a hearing loss. This study will use individual, in-depth face-to-face or online interviews. With participants' permission, interviews will be audio-recorded and transcribed verbatim. A grounded theory approach to concurrent data gathering and analysis will develop grouped codes and categories and link these to provide a novel theory to describe the experience of hearing loss. ETHICS AND DISSEMINATION: The study was approved by the West of Scotland Research Ethics Service (approval date: 6 May 2022 ref: 22/WS/0057) and the Health Research Authority and Health and Care Research Wales Approval (approval date: 14 June 2022; IRAS project ID: 308816). The research will inform the development of a Patient Reported Experience Measure to improve the information and support given to patients. Findings will be disseminated through peer-reviewed articles and at academic conferences, as well as to our patient and public involvement groups, healthcare professionals, audiology services and local commissioners.

Publication DOI:
Divisions: College of Health & Life Sciences > School of Optometry > Audiology
College of Health & Life Sciences
College of Health & Life Sciences > School of Psychology
College of Health & Life Sciences > Aston Institute of Health & Neurodevelopment (AIHN)
Funding Information: This study is supported by a National Institute for Health Research (NIHR) Health Services and Delivery Research programme (Funding stream REF NIHR 131597). JB is partly funded by National Institute for Health and Care Research Applied Research Collaborat
Additional Information: Copyright © Author(s) (or their employer(s)) 2023. Published by BMJ. Re-use permitted under CC BY. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made.
Publication ISSN: 2044-6055
Last Modified: 16 May 2024 07:25
Date Deposited: 13 Jun 2023 10:50
Full Text Link:
Related URLs: https://bmjopen ... nt/13/6/e069363 (Publisher URL)
http://www.scop ... tnerID=8YFLogxK (Scopus URL)
PURE Output Type: Article
Published Date: 2023-06-07
Accepted Date: 2023-05-21
Authors: Pryce, Helen (ORCID Profile 0000-0001-5183-6236)
Smith, Sian Karen
Burns-O'Connell, Georgina (ORCID Profile 0000-0001-6430-8627)
Shaw, Rachel (ORCID Profile 0000-0002-0438-7666)
Hussain, Saira (ORCID Profile 0000-0002-8422-1366)
Banks, Jonathan
Hall, Amanda (ORCID Profile 0000-0001-8520-6005)
Knibb, Rebecca (ORCID Profile 0000-0001-5561-0904)
Greenwood, Rosemary
Straus, Jean



Version: Published Version

License: Creative Commons Attribution

| Preview

Export / Share Citation


Additional statistics for this record