Informing research design through patient and public involvement; patients and carers with lived experience post-hospital discharge and potential roles for general practice pharmacists

Abstract

BACKGROUND: Medication safety across care transitions remains a significant burden on healthcare systems. Patient and Public Involvement (PPI) is useful at the very early stages of intervention development to inform research priorities. The aim of this PPI was to scope patients' and carers' lived experiences of medicines management post-hospital discharge to inform the design of a research proposal. METHODS: A research planning PPI workshop and additional one-to-one discussions were undertaken with patients and informal carers who had experienced a recent discharge from hospital and were prescribed regular repeat medications. RESULTS: The 12 public contributors identified that the priority for patients was not limited to medication management alone but rather a broader care package. Multiple themes as priorities for research emerged: (1) broader holistic and social aspects of care involving various healthcare professionals, (2) practical aspects such as timeliness of follow-up and co-ordination of medication management, and (3) communication with the patient/carer and information transfer between settings. CONCLUSION: Valuable insights from this PPI helped inform future research design priorities and identify the need for a more holistic approach to care. Future work with multi-stakeholder engagement involving different professionals across sectors is needed to explore safer integrated transitions of care, as well as the use of ongoing PPI and co-design, considering populations that are most vulnerable.

Publication DOI: https://doi.org/10.1186/s13104-025-07248-6
Divisions: College of Health & Life Sciences > Aston Pharmacy School
College of Health & Life Sciences
Aston University (General)
Funding Information: This Patient and Public Involvement activity was funded by the National Institute of Health and Care Research (NIHR) West Midlands Research Design Service (RDS) and also supported by the award to FY of a West Midlands Health Education England (HEE) funded
Additional Information: Copyright © The Author(s) 2025. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder.
Uncontrolled Keywords: Humans,Caregivers/psychology,Patient Discharge,Patient Participation,Pharmacists,Research Design,General Practice,Professional Role,Female,Male
Publication ISSN: 1756-0500
Last Modified: 01 May 2025 08:43
Date Deposited: 24 Apr 2025 10:28
Full Text Link:
Related URLs: https://bmcresn ... 104-025-07248-6 (Publisher URL)
PURE Output Type: Article
Published Date: 2025-04-17
Accepted Date: 2025-04-07
Authors: Yahya, Faiza
Bartlett, Sam
Paudyal, Vibhu
Hadi, Muhammad Abdul
Nazar, Hamde
Maidment, Ian (ORCID Profile 0000-0003-4152-9704)

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