Knibb, R. C., Herbert, L. J., Jones, C. J., Protudjer, J. L.P., Screti, C., Roleston, C., Brough, H. A., Warren, C., Lombard, L., Santos, A. F., Gupta, R., Vickery, B. P. and Marchisotto, M. J. (2024). Global Availability and Uptake of Psychological Services for Adults, Caregivers and Children with Food Allergy. Allergy, 79 (10), pp. 2787-2797.
Abstract
Background: Food allergy (FA) is associated with poor health-related quality of life and high levels of psychological distress. Psychological support is extremely important but not always available. As part of the Global Access to Psychological Services for Food Allergy (GAPS) study, we aimed to assess psychological distress and service use among adults, caregivers and children with FA in a global survey. Methods: Participants (n = 1329 adults with FA; n = 1907 caregivers of children with FA) from >20 countries were recruited through patient organisations, social media advertisements and online survey panels to complete an online survey. Surveys were available in six languages. Results: A total of 67.7% of adults and 77.2% of caregivers reported direct experience, and 51.6% of caregivers said their child had experienced FA-related psychological distress. The most commonly reported issue was anxiety about having an allergic reaction. Less than 20% had been assessed for FA-related psychological distress. There were significant differences across countries for levels of distress, screening for distress, seeing a mental health professional and being diagnosed with a FA-related mental health disorder (all p < .001). The United Kingdom, Australia and Brazil had the highest number of participants reporting distress. The most commonly reported barrier to seeing a mental health professional was cost. Conclusions: FA-related distress is common across countries, but with substantial country-to-country variability. Allergy providers are encouraged to routinely assess families for psychological distress and provide access to appropriate mental health resources. Development and implementation of evidence-based, patient-informed accessible, affordable FA interventions in multiple languages is urgently needed.
Publication DOI: | https://doi.org/10.1111/all.16204 |
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Divisions: | College of Health & Life Sciences > School of Psychology College of Business and Social Sciences > Aston Business School > Work & Organisational Psychology College of Business and Social Sciences > School of Social Sciences & Humanities > Sociology and Policy Aston University (General) |
Funding Information: | Funding for this project was awarded by Novartis, Aimmune, National Peanut Board and EAACI. |
Additional Information: | Copyright © 2024 The Author(s). Allergy published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
Uncontrolled Keywords: | adult,caregiver,child,food allergy,mental health,psychological,suppport,Immunology and Allergy,Immunology |
Publication ISSN: | 1398-9995 |
Data Access Statement: | The data that support the findings of this study are available on request from the corresponding author. The data are not publicly available due to privacy or ethical restrictions |
Last Modified: | 04 Nov 2024 09:33 |
Date Deposited: | 08 Jul 2024 12:15 |
Full Text Link: |
https://www.aut ... th-food-allergy |
Related URLs: |
https://onlinel ... .1111/all.16204
(Publisher URL) http://www.scop ... tnerID=8YFLogxK (Scopus URL) |
PURE Output Type: | Article |
Published Date: | 2024-10 |
Published Online Date: | 2024-06-21 |
Accepted Date: | 2024-05-12 |
Authors: |
Knibb, R. C.
(
0000-0001-5561-0904)
Herbert, L. J. Jones, C. J. Protudjer, J. L.P. Screti, C. Roleston, C. Brough, H. A. Warren, C. Lombard, L. Santos, A. F. Gupta, R. Vickery, B. P. Marchisotto, M. J. |