A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences?:How are co-researchers involved and what are their experiences?


Background: Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive research methodologies, systematically appraises the involvement of researchers with intellectual disabilities, and identifies facilitators and barriers to inclusive research. Researchers' experiences of engaging with inclusive research are synthesised. Method: Seventeen empirical studies focused upon inclusive health and social care research were identified. The associated inclusive research methodologies employed, and the stages in which researchers with intellectual disabilities were involved, along with the experiences of researchers with and without intellectual disabilities were synthesised. Results: Papers focused on a broad range of health and social care topics and largely employed qualitative or mixed‐methods designs. Researchers with intellectual disabilities were frequently involved with data collection, analysis and dissemination. Facilitators of inclusive research comprised sharing power, team working, having sufficient resources and making research methodologies accessible. Conclusions: Researchers with intellectual disabilities are involved in a wide range of methodologies and research tasks. How the added value of inclusive research is measured and its impact on outcomes, require consideration.

Publication DOI: https://doi.org/10.1111/jar.13100
Divisions: College of Health & Life Sciences > School of Psychology
College of Health & Life Sciences > Aston Institute of Health & Neurodevelopment (AIHN)
College of Health & Life Sciences
Additional Information: Copyright © 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. Funding Information: Olivia Hewitt is supported by an NIHR Clinical Doctoral Fellowship (NIHR300501). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.
Uncontrolled Keywords: research,inclusive,health and social care research,co‐production,intellectual disability,systematic review
Publication ISSN: 1468-3148
Last Modified: 23 May 2024 07:22
Date Deposited: 03 Apr 2023 10:51
Full Text Link:
Related URLs: https://onlinel ... .1111/jar.13100 (Publisher URL)
http://www.scop ... tnerID=8YFLogxK (Scopus URL)
PURE Output Type: Review article
Published Date: 2023-07
Published Online Date: 2023-04-01
Accepted Date: 2023-03-15
Submitted Date: 2022-04-07
Authors: Hewitt, Olivia
Langdon, Peter E.
Tapp, Katherine
Larkin, Michael (ORCID Profile 0000-0003-3304-7000)



Version: Published Version

License: Creative Commons Attribution

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