Experiences of Blogging About Visible and Long-term Skin Conditions:Interpretative Phenomenological Analysis

Abstract

Background: Skin conditions can detract from people's quality of life, much like conditions such as cancer, chronic pain, and depression. Visible skin conditions can lead to risk of stigmatization. It is acknowledged that there is a lack of available psychosocial support for people living with chronic skin conditions. One way in which individuals with long-term conditions are self-managing and providing peer support is through blogging and exchanging information on the web. To date, no research has specifically investigated how individuals with skin conditions experience the use blogging for self-management. Objective: This study sought to investigate the experiences of individuals with visible, long-term skin conditions when blogging about their conditions. Methods: A systematic blog search and a short survey were used for recruitment. A total of 4 participants took part in email interviews, which were analyzed using interpretative phenomenological analysis (IPA). Skin conditions included alopecia, psoriasis, and hirsutism. The content of these individuals' blogs was also analyzed using a qualitative template method derived from the IPA analysis. Results: The interviews and accounts revealed a clear sense of uncertainty about the course of the bloggers' skin conditions. This appeared to be associated with feelings of distress and isolation, searching for treatments, and ultimately a sense of defeat. The data revealed that blogging provided a space where this sense of defeat was managed and challenged. Posting on the web facilitated connection with others and enabled support networks to be established that assisted in challenging the feelings of isolation experienced. The data demonstrate the important role that blogging played for these participants in developing a sense of acceptance of their condition. Conclusions: Blogging may provide a way for individuals to self-manage distress associated with visible skin conditions. It may provide similar benefits to those known to be derived from emotional disclosure that occurs during writing, with an added peer support dimension. Blogging has occurred naturalistically on web-based forums, and this study demonstrates how this form of interaction may warrant adaptation for use with web-based psychosocial interventions for people living with skin conditions. This study had a limited sample of 4 bloggers; therefore, further exploration would be needed to consider the utility of this approach.

Publication DOI: https://doi.org/10.2196/29980
Divisions: College of Health & Life Sciences > School of Psychology
College of Health & Life Sciences > Aston Institute of Health & Neurodevelopment (AIHN)
College of Health & Life Sciences
Funding Information: This research was conducted as part of a funded clinical psychology doctoral program by Health Education England.
Additional Information: Funding Information: This research was conducted as part of a funded clinical psychology doctoral program by Health Education England. Publisher Copyright: ©Selina K Tour, Andrew Thompson, Ruth A Howard, Michael Larkin.
Uncontrolled Keywords: blogging,emotional disclosure,interpretative phenomenological analysis,peer support,psychodermatology,qualitative research,self-management,stigmatisation,Dermatology,Health Informatics,Health Information Management
Publication ISSN: 2562-0959
Last Modified: 06 May 2024 07:37
Date Deposited: 23 May 2022 11:28
Full Text Link:
Related URLs: http://www.scop ... tnerID=8YFLogxK (Scopus URL)
https://derma.j ... g/2022/2/e29980 (Publisher URL)
PURE Output Type: Article
Published Date: 2022-04-22
Accepted Date: 2021-10-31
Authors: Tour, Selina K.
Thompson, Andrew
Howard, Ruth A.
Larkin, Michael (ORCID Profile 0000-0003-3304-7000)

Download

[img]

Version: Published Version

License: Creative Commons Attribution

| Preview

Export / Share Citation


Statistics

Additional statistics for this record