Current transition management of adolescents and young adults with allergy and asthma: a European survey

Abstract

Abstract: Background: Transition from parent-delivered to self-management is a vulnerable time for adolescents and young adults (AYA) with allergy and asthma. There is currently no European guideline available for healthcare professionals (HCPs) on transition of these patients and local/national protocols are also mostly lacking. Methods: European HCPs working with AYA with allergy and asthma were invited to complete an online survey assessing challenges of working with these patients, current transition practices and access to specific healthcare resources. Results: A total of 1179 responses from 41 European countries were collected. Most HCPs (86%) reported a lack of a transition guideline and a lack of a transition process (20% paediatric HCPs, 50% of adult HCPs, 56% HCP seeing all ages). Nearly half (48%) acknowledged a lack of an established feedback system between paediatric and adult medical services. Many respondents never routinely asked about mental health issues such as self-harm or depression and are not confident in asking about self-harm (66.6%), sexuality (64%) and depression (43.6%). The majority of HCPs (76%) had not received specific training in the care of AYA although 87% agreed that transition was important for AYA with allergy and asthma. Conclusion: Although there was agreement that transition is important for AYA with allergy and asthma, there are crucial limitations and variations in the current provision of transition services across Europe. Standardisation of AYA management and specific training are required. This should improve management and continuity of care during adolescence and into adulthood to achieve the best healthcare outcomes.

Publication DOI: https://doi.org/10.1186/s13601-020-00340-z
Divisions: College of Health & Life Sciences > School of Psychology
College of Health & Life Sciences > Applied Health Research Group
College of Health & Life Sciences
Additional Information: © The Author(s) 2020. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativeco mmons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/ zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
Uncontrolled Keywords: Adolescent,Allergy,Healthcare professional,Transition,Young adult,Immunology and Allergy,Immunology,Pulmonary and Respiratory Medicine
Full Text Link:
Related URLs: https://ctajour ... 601-020-00340-z (Publisher URL)
http://www.scop ... tnerID=8YFLogxK (Scopus URL)
PURE Output Type: Article
Published Date: 2020-10-07
Accepted Date: 2020-05-30
Authors: Khaleva, Ekaterina
Vazquez-Ortiz, Marta
Comberiati, Pasquale
DunnGalvin, Audrey
Pite, Helena
Blumchen, Katharina
Garriga-Baraut, Teresa
Hox, Valerie
Santos, Alexandra F.
Gore, Claudia
Knibb, Rebecca C. (ORCID Profile 0000-0001-5561-0904)
Alviani, Cherry
Mortz, Charlotte G.
Angier, Elizabeth
Duca, Bettina
Jensen, Britt
Sanchez-Garcia, Silvia
Gowland, M. Hazel
Timmermans, Frans
Pfaar, Oliver
Roberts, Graham

Download

[img]

Version: Published Version

License: Creative Commons Attribution

| Preview

[img]

Version: Published Version

License: Creative Commons Attribution


Export / Share Citation


Statistics

Additional statistics for this record