Exploring how parents of children with unilateral hearing loss make habilitation decisions: a qualitative study

Abstract

Objective This study sought to explore the decision making needs of parents managing the hearing and communication needs of children with unilateral hearing loss. Design An inductive, qualitative method was used. The data were analysed using a constant comparative approach, consistent with Grounded Theory method. Study sample Twenty one families participated in interviews yielding data on twenty two children. Each of these families had at least one child with unilateral hearing loss. The age range of the children varied from four months to sixteen years old. All parents were English speaking and received care from National Health Service Audiology departments across the United Kingdom. Results Parents valued professionals’ opinions, but information provision was inconsistent. As their children mature, parents increasingly valued their child’s input. Parent-child discussions focussed on how different management strategies fit their child’s preferences. Parents were proactive in obtaining professional advice, and integrating this with their own iterative assessment of their child’s performance. Conclusions Decision making is an iterative process. Parents make nuanced decisions which aim to preserve a sense of what is normal for them. Clinicians need to recognise the parental view, including where it may contrast with a medicalised or clinical view.

Publication DOI: https://doi.org/10.1080/14992027.2020.1804080
Divisions: College of Health & Life Sciences > School of Optometry > Audiology
College of Health & Life Sciences
College of Health & Life Sciences > Applied Health Research Group
Additional Information: © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group on behalf of British Society of Audiology, International Society of Audiology, and Nordic Audiological Society This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way
Uncontrolled Keywords: paediatric,parent,shared decision making,unilateral hearing loss,Language and Linguistics,Linguistics and Language,Speech and Hearing
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Related URLs: https://www.tan ... 27.2020.1804080 (Publisher URL)
http://www.scop ... tnerID=8YFLogxK (Scopus URL)
PURE Output Type: Article
Published Date: 2021
Published Online Date: 2020-08-13
Accepted Date: 2020-07-24
Authors: Hussain, Saira
Pryce, Helen (ORCID Profile 0000-0001-5183-6236)
Neary, Amy
Hall, Amanda (ORCID Profile 0000-0001-8520-6005)

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