Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review


Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n=41,232) and full-text articles (n=573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.

Publication DOI:
Divisions: College of Health & Life Sciences
College of Health & Life Sciences > Applied Health Research Group
Additional Information: © 2017, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Publication ISSN: 1873-7811
Full Text Link:
Related URLs: https://www.sci ... 1368?via%3Dihub (Publisher URL)
PURE Output Type: Review article
Published Date: 2017-11
Published Online Date: 2017-08-11
Accepted Date: 2017-08-09
Authors: Flynn, Samantha
Vereenooghe, L
Hastings, Richard
Adams, Dawn
Cooper, Sally-Anne
Gore, Nick
Hatton, Chris
Hood, Kerry
Jahoda, Andrew
P E, Langdon
McNamara, R
Oliver, Chris
Roy, Ashok
Totsika, Vasiliki
Waite, Jane (ORCID Profile 0000-0002-8676-3070)

Export / Share Citation


Additional statistics for this record