Cultural affordance, social relationships, and narratives of independence:Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK

Larkin, Michael, Unwin, Gemma, Iyer, Malvika, Tsimopoulou, Ioanna, Zahid, Sofia, Malik, Kulsoom, Stenfert Kroese, Biza and Rose, John L. (2018). Cultural affordance, social relationships, and narratives of independence:Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK. International Journal of Developmental Disabilities, 64 (3), pp. 195-203.

Abstract

Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services. Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches. Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of ‘cultural affordance’ may be useful alternative to ‘cultural competence’. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery.

Publication DOI: https://doi.org/10.1080/20473869.2018.1469807
Divisions: Life & Health Sciences
Life & Health Sciences > Applied Health Research Group
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis Group in International Journal of Developmental Disabilities on 8 June 2018, available online at: http://www.tandfonline.com/10.1080/20473869.2018.1469807
Uncontrolled Keywords: culture,ethnicity,independence,interviews,pluralist,relationships,social care,Developmental and Educational Psychology,Psychiatry and Mental health
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Related URLs: http://www.scop ... tnerID=8YFLogxK (Scopus URL)
https://www.tan ... 69.2018.1469807 (Publisher URL)
Published Online Date: 2018-06-08
Authors: Larkin, Michael ( 0000-0003-3304-7000)
Unwin, Gemma
Iyer, Malvika
Tsimopoulou, Ioanna
Zahid, Sofia
Malik, Kulsoom
Stenfert Kroese, Biza
Rose, John L.

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Version: Accepted Version

Access Restriction: Restricted to Repository staff only until 8 June 2019.


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