The Gilles de la Tourette Syndrome-Quality of Life Scale for children and adolescents (C&A-GTS-QOL):development and validation of the Italian version

Cavanna, Andrea E., Luoni, Chiara, Blangiardo, Rosanna, Eddy, Clare M., Silvestri, Paola R., Calì, Paola V., Seri, Stefano, Balottin, Umberto, Cardona, Francesco, Rizzo, Renata and Termine, Cristiano (2013). The Gilles de la Tourette Syndrome-Quality of Life Scale for children and adolescents (C&A-GTS-QOL):development and validation of the Italian version. Behavioural Neurology, 27 (1), pp. 95-103.

Abstract

BACKGROUND: Gilles de la Tourette syndrome (GTS) is a chronic childhood-onset neuropsychiatric disorder with a significant impact on patients' health-related quality of life (HR-QOL). Cavanna et al. (Neurology 2008; 71: 1410-1416) developed and validated the first disease-specific HR-QOL assessment tool for adults with GTS (Gilles de la Tourette Syndrome-Quality of Life Scale, GTS-QOL). This paper presents the translation, adaptation and validation of the GTS-QOL for young Italian patients with GTS. METHODS: A three-stage process involving 75 patients with GTS recruited through three Departments of Child and Adolescent Neuropsychiatry in Italy led to the development of a 27-item instrument (Gilles de la Tourette Syndrome-Quality of Life Scale in children and adolescents, C&A-GTS-QOL) for the assessment of HR-QOL through a clinician-rated interview for 6-12 year-olds and a self-report questionnaire for 13-18 year-olds. RESULTS: The C&A-GTS-QOL demonstrated satisfactory scaling assumptions and acceptability. Internal consistency reliability was high (Cronbach's alpha > 0.7) and validity was supported by interscale correlations (range 0.4-0.7), principal-component factor analysis and correlations with other rating scales and clinical variables. CONCLUSIONS: The present version of the C&A-GTS-QOL is the first disease-specific HR-QOL tool for Italian young patients with GTS, satisfying criteria for acceptability, reliability and validity. © 2013 - IOS Press and the authors. All rights reserved.

Publication DOI: https://doi.org/10.3233/BEN-120274
Divisions: Life & Health Sciences > Psychology
Life & Health Sciences > Clinical and Systems Neuroscience
Life & Health Sciences > Aston Brain Centre
Life & Health Sciences
Additional Information: Copyright © 2013 Hindawi Publishing Corporation. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Uncontrolled Keywords: behaviour,Gilles de la Tourette syndrome,quality of life,tics,wellbeing,Neuropsychology and Physiological Psychology,Clinical Neurology,Neurology
Full Text Link: http://www.hind ... 013/140210/abs/
Related URLs: http://www.scop ... tnerID=8YFLogxK (Scopus URL)
Published Date: 2013-05-06
Authors: Cavanna, Andrea E.
Luoni, Chiara
Blangiardo, Rosanna
Eddy, Clare M.
Silvestri, Paola R.
Calì, Paola V.
Seri, Stefano ( 0000-0002-9247-8102)
Balottin, Umberto
Cardona, Francesco
Rizzo, Renata
Termine, Cristiano

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