Individual's recollections of their experiences in eye clinics and understanding of their eye condition:results from a survey of visually impaired people in Britain

Abstract

Background/aims: Network 1000 is a UK-based panel survey of a representative sample of adults with registered visual impairment, with the aim of gathering information about people’s opinions and circumstances. Method: Participants were interviewed (Survey 1, n = 1007: 2005; Survey 2, n = 922: 2006/07) on a range of topics including the nature of their eye condition, details of other health issues, use of low vision aids (LVAs) and their experiences in eye clinics. Results: Eleven percent of individuals did not know the name of their eye condition. Seventy percent of participants reported having long-term health problems or disabilities in addition to visual impairment and 43% reported having hearing difficulties. Seventy one percent reported using LVAs for reading tasks. Participants who had become registered as visually impaired in the previous 8 years (n = 395) were asked questions about non-medical information received in the eye clinic around that time. Reported information received included advice about ‘registration’ (48%), low vision aids (45%) and social care routes (43%); 17% reported receiving no information. While 70% of people were satisfied with the information received, this was lower for those of working age (56%) compared with retirement age (72%). Those who recalled receiving additional non-medical information and advice at the time of registration also recalled their experiences more positively. Conclusions: Whilst caution should be applied to the accuracy of recall of past events, the data provide a valuable insight into the types of information and support that visually impaired people feel they would benefit from in the eye clinic.

Publication DOI: https://doi.org/10.1111/j.1475-1313.2010.00784.x
Divisions: Life & Health Sciences > Optometry
Life & Health Sciences > Ophthalmic Research Group
Life & Health Sciences
Life & Health Sciences > Vision, Hearing and Language
Additional Information: Acknowledgement to the Journal, College of Optometrists and Blackwell Publishing. The definitive version is available at www.onlinelibrary.wiley.com
Uncontrolled Keywords: adolescent,adult,aged,Great Britain,health knowledge,health surveys,Humans,Mental Recall,Middle Aged,hospital outpatient clinics,patient education as topic,reproducibility of results,self-help devices,vision disorders,visually impaired persons,young adult,Medicine(all),Ophthalmology,Sensory Systems,Optometry
Full Text Link: http://onlineli ... 0784.x/abstract
Related URLs: http://www.scop ... tnerID=8YFLogxK (Scopus URL)
PURE Output Type: Article
Published Date: 2010-11-18
Published Online Date: 2010-06-10
Authors: Douglas, Graeme
Pavey, Sue
Corcoran, Christine
Eperjesi, Frank ( 0000-0003-4358-0095)

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Version: Accepted Version


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