Researching experiences of cancer:the importance of methodology

Entwistle, V., Tritter, J.Q. and Calnan, M. (2002). Researching experiences of cancer:the importance of methodology. European Journal of Cancer Care, 11 (3), pp. 232-237.


This paper draws on contributions to and discussions at a recent MRC HSRC-sponsored workshop 'Researching users' experiences of health care: the case of cancer'. We focus on the methodological and ethical challenges that currently face researchers who use self-report methods to investigate experiences of cancer and cancer care. These challenges relate to: the theoretical and conceptual underpinnings of research; participation rates and participant profiles; data collection methods (the retrospective nature of accounts, description and measurement, and data collection as intervention); social desirability considerations; relationship considerations; the experiences of contributing to research; and the synthesis and presentation of findings. We suggest that methodological research to tackle these challenges should be integrated into substantive research projects to promote the development of a strong knowledge base about experiences of cancer and cancer care.

Publication DOI:
Divisions: Languages & Social Sciences > Sociology
Languages & Social Sciences
Languages & Social Sciences > Sociology research group
Uncontrolled Keywords: research methodology ,cancer care,patient experiences,experiences of care provision,user involvement
Full Text Link: http://onlineli ... 0344.x/abstract
Related URLs: http://www.scop ... tnerID=8YFLogxK (Scopus URL)
Published Date: 2002-09
Authors: Entwistle, V.
Tritter, J.Q. ( 0000-0002-1651-2428)
Calnan, M.

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